What's New ?

Is rigorous retrospective harmonization possible? Application of the DataSHaPER approach across 53 large studies has been published in the International Journal of Epidemiology. The first theoretical paper on the DataSHaPER approach is also available on the IJE website
The Renal DataSchema is now online. This DataSchema addresses Chronic Kidney Disease (CKD) and was developed in collaboration with GENECURE;
A new search tool that lets you track "elements" across different DataSchemas is now available;
When applicable, we have linked some DataSchemas elements (themes/domains/variables) to PhenX elements;
The new "What is the DataSHaPER" page contains technical documentation with helpful descriptions of the DataSHaPER.

Visit the P³G Observatory website to see recent additions and improvements.

Welcome to DataSHaPER website

The DataSHaPER (Data Schema and Harmonization Platform for Epidemiological Research) is both a scientific approach and a suite of practical tools. Its primary aims are to facilitate the prospective harmonization of emerging biobanks, provide a template for retrospective synthesis and support the development of questionnaires and information-collection devices, even when pooling of data with other biobanks is not foreseen.

What is the DataSHaPER?

The development of these tools has been jointly funded by P³G, CPT, PHOEBE, and Generation Scotland.

	A DataSchema identifies and describes a thematic set of core variables that are of particular value in a specified scientific setting. It also contains associated support material including variable definitions, links to relevant Ontologies and Classifications, and access to reference questionnaires and operating procedures.
	The Harmonization Platform provides a template for the formal estimation of the potential to synthetized information between studies. At present, access to the Harmonization Platform is limited to collaborative context.

Please be aware of the terms and conditions before proceeding.